BABY BORN WITH RARE BIRTH MARK COVERING 80 OF HER BODYbr br WITH VID AND PIXbr br BY SAM PRINGLEbr This devastated mum has shared her heartbreak after giving birth to a baby girl with a one-in-a-million skin condition that covers almost her entire body - and leaves her facing a lifetime of painful surgeries.br br Katelyn Clarke welcomed her daughter Macey-Mai into the world on May 7th, 2025 but her joy quickly turned to fear when doctors discovered her newborn had a Giant Congenital Melanocytic Nevus (GCMN) - an enormous birthmark that now spans from her neck to her bum, wrapping around her torso and spreading across her limbs and head.br br The rare condition - seen in just 1 in 500,000 babies - puts Macey-Mai at an increased risk of developing melanoma, a deadly form of skin cancer.br Katelyn told how the birthmark, which already covers 80 of her body, will continue to grow as she does and could stretch more than 40cm across by the time she’s fully grown.br br Katelyn from Plymouth, UK, said: "Macey-Mai is going to need many, many more appointments and surgeries all throughout her childhood.br br "Each tumour carries risks. Surgery carries risks. And financially, we don’t know how we’re going to cope."br br But it’s not just the size or appearance of the nevus that’s worrying, it’s the tumours developing within it.br br At just twelve weeks old, her mum explained how Macey-Mai is already preparing for surgery to remove large tumours from her back after Katelyn was given warning signs that malignancy could already be forming. br br Adding to the struggle, the family has been told their daughter will need repetitive surgeries for the rest of her life. Worse still, there is no option to remove the nevus entirely - it’s simply too large tobr operate on.br br Katelyn revealed the sheer complexity of caring for her fragile daughter, who cannot lie on her back due to the pain and bleeding caused by the tumours.br br Because of this, she can’t travel in a car seat, meaning the family must take long, expensive public transport journeys - including 500-mile round trips - just to attend vital appointments.br br Even routine procedures like an MRI scan are dangerous. The mum claims that Macey-Mai needs one soon to check for neurocutaneous melanosis - a complication where pigment cells spread to the brain and spinal cord. As she weighs under 5kg, she must be put under general anaesthetic with a breathing tube for the hours-long scan.br br Despite the hardship, the family has been overwhelmed by support from strangers after setting up a GoFundMe page to help with mounting medical costs. So far, kind-hearted donors have raised over £5,000, helping them buy essential baby monitors, new clothing to replace blood-stained garments, and attend key appointments.br br Kateyln continued: “It’s extremely hard watching our little girl go through so much. But it’s even harder wondering how we’ll afford to get her the help she needs.br br “My daughter tries to cuddle Macey and says, ‘Take her now mummy, I think she’s bleeding. No four-year-old should be experiencing that.br br “We’ve had people say, ‘At least she can wear a hat,’ or, ‘At least her back’s covered by a top’ - like it’s something to hide. This isn’t just a cosmetic thing - it’s life-threatening.br br “We are so grateful for every donation, but we are now struggling to work out how we’ll manage these next few surgeries. We need help to get our baby to hospital. We need help to give her a chance.